UPDATES


Posted below are the most recent updates on Jacob and his condition. If you wish to receive email alerts when new information has been posted, enter your email below.



Monday, May 16th

I apologize for not writing for a couple days.  I’ve been enjoying my time home way too much!  🙂  I’m sure you all understand.  Quite a bit to tell, so I’ll start with Saturday…….

Saturday morning was so nice.  Ken’s first day off, so we all got to sleep in and enjoy a morning together.  It felt as if we had never left and that this was all a bad dream.  Wish that it was true!  🙁  Anyway, we just enjoyed a nice day together doing nothing.   Later in the afternoon, Jacob’s best friend Evan came over with his mom Stephanie and we had a wonderful visit.  Caleb ended up having his buddy Jesse over too.  Ken played outside with the boys – football and tag while us ladies chatted.  Jacob had a great time “running” around the yard and playing. 

Sunday, we got up and went to church.  It was so wonderful being back at Silver Creek Church.  It’s been too long for me.  I missed not being there.   Such wonderful people and loved seeing and chatting with our Pastor Kevin Taylor and his wife Veronica.   It’ll be hard only going once a month, but better than not at all.  After church, we went out for lunch to the A&M Cafe in Skandia.  Great lunch!  When we got home, two more of Jacob’s good friends came over – Nathan, his brother Tyler and mom Lori along with Dawson and his mom Nadeen.  The boys had a great time!  Us ladies did too!  🙂  They played football and some basketball.  I could tell he was getting frustrated not being able to keep up with all of them, but hopefully that’ll keep him motivated.  He told me, “It’s pretty bad that even Caleb is faster than me now!”  🙁  I’m surprised that poor boy could walk today, but great exercise for him.  I know he wouldn’t take back those two days for anything!

This morning I brought Caleb to school.  It was funny seeing him walk into class for the first time in two months.   All the kids were swarming around him and following him.   I could tell he was loving it!   Once I got home, we left for the clinic.  Jacob met the doctors that will be taking care of him here in Marquette when we’re home.  Very nice and impressed how well they interacted with Jacob.  They drew blood and we waited for about an hour to get the results back.  Jacob played on their laptop, Ken played Jacob’s DS and I played on my phone to pass the time.  🙂  Once he got his results back, they administered his chemo.  It is a quick one with just a push of the syringe.  Jacob’s blood counts weren’t great, but good enough to have chemo done, so good enough for me.  I’d hate to postpone this thing anymore than we have to.  We got some lunch and came home.  Jacob was pooped, so he rested while Ken and I went for a nice walk back on the property.  It sure makes you appreciate what you have a lot more!  So beautiful!  Jacob’s still quite tired tonight.   He said his throat feels scratchy, so I hope he’s not coming down with something.  He’s going to try to go to school tomorrow afternoon for a while, so I hope it’s gone in the morning.  Ken and Caleb are fishing as I write this.  Hopefully not for too much longer so I can get Caleb to bed.  But I know this is great bonding time for the two of them. 

Please continue to pray for Jacob and his healing!  Also please pray that his blood counts will continue to rise this week so they are nice and high for chemo next Monday.  Also, please pray that Jacob’s not coming down with something and that he’ll be able to enjoy the rest of the week.  Also, please continue to pray that his walking and running comes back to him 100%.  We are so thankful for all of your prayers!  I know they work!  God is working in Jacob’s life and I know He’s working in my life as well as Ken’s.   God has big plan’s!  I just know it!!!

In Him we were also chosen, having been predestined according to the plan of Him who works out everything in conformity with the purpose of His will.   Ephesians 1:11

Friday, May 13th

Well, not much to report today.  That is a good thing.  A very good thing.  Caleb still isn’t feeling the best.  My patience was running low this morning with the bellyaching.  No pun intended.  Like I said last night, he isn’t a very good sick kid.  So, I ended up bringing him into town to the doctors to rule out anything serious.  Thankfully it wasn’t, which I suspected, but the crying was too much!  Just some type of virus in his guts, which I guess is going around, so we’ll have to be extra careful to do really good hand-washing because of Jacob.  I feel bad for the poor little guy because I know he’s in extreme pain, but WOW!  🙂  I’m telling ya, God is certainly testing me.  I hope I pass!  🙂

Jacob did pretty good today.  I could tell he got better and better as the day went on.  Stronger and eating a little bit more.   He seemed pretty happy and was cracking  jokes.  The Jacob we all know and love.  A couple of his good friends called him today after school.  That certainly boosted his spirits.   We watched America’s Funniest Home Videos tonight and that certainly got him laughing – his favorite show!  Anyone that has ever watched that show with Jacob before, knows that it’s funnier listening to Jacob crack up than the actual videos.   Good therapy for all of us!  🙂

Ken’s last day of work was today – he took next week off so we could have some good family bonding time.  Can’t wait!  We probably won’t do much or go anywhere, but that’ll be the best.  Just relaxing at my home. 

Please continue to pray for Jacob.   Please pray that his blood counts are good on Monday.  If they are, he will have chemo in Marquette.  It will be administered quickly, so we can enjoy the rest of the day and hopefully he won’t feel too bad afterwards with minimal side effects.   Also, please continue to pray for Caleb’s healing.  They want to see their friends so bad and I don’t feel right about that until he’s better.  I would hate for anyone else to get sick.

 

P.S.  Happy Birthday Aunt Kim!

Thursday, May 12th

Home sweet home!!!  That’s all I can say!  You can’t even imagine how good it feels to be home after almost 2 months of being gone.  It is such a good feeling, although strange.  It feels like we’ve been gone so much longer than that.  It’s going to be so hard to leave next week.  I don’t even want to think about it.   And sleeping in my own bed??  Ahhhh…….   After sleeping in a hospital (a nasty cot or a hard pull-out), my bed feels like heaven.  🙂 

The trip went ok.  I guess about as good as I expected.   Jacob didn’t do or say much.  He slept most of the way and got sick a couple times.  Caleb slept quite a bit too, but when he wasn’t…oh my!  That child is the worst sick kid EVER!!  Just whined the whole time.  God is really testing me right now!  It took us 8 hours to get home with our stops, but we got home nonetheless.  Jacob plopped on the couch right when we walked in the door and started crying.  He said he was just so happy to be home!  🙂 

Today was about the same.  I actually got Jacob to eat a bit, although he was sick again this morning.  While he was throwing up, I asked him if he was hating life right about now and he said “Nope!”  What an amazing child!  Caleb is still not feeling the best.  Hopefully he’s much better tomorrow.  My patience is certainly being tested.   I did finally talk Jacob into getting off the couch and sit out on the deck for a little while.  He got teary-eyed and said that “Our property is so beautiful!”.  We’re all enjoying things a little more than we used to and to not take anything for granted.

We’re very excited that Ken took the week off from work next week.  We’ll have some really good bonding time!  I think Caleb will go to school next week (if he’s feeling better) and Jacob will try a couple times, but only for a few hours at a time.  I’m sure he’ll get tired out easily, especially since he’s not getting around the best yet.  Seeing their friends is something they’re both looking forward to.

Please continue to pray for Jacob’s healing and Caleb’s.  What are the chances he would get sick now when we’re home?  He hasn’t been sick in months!  Hopefully no one else gets it.  Also, please continue that Jacob will have minimal or no side effects from the chemo and that his walking and running will be back to 100% in no time!   We know that God has big plans for Jacob, for the whole family!  I’m excited to find out what they are.  We’re giving him all the glory!!!  God is good!

Thanks to all of you who are working so hard on the benefit dinner for next Saturday.  And those of you who have made donations!  You are truly amazing people and we could never thank you enough!

Tuesday, May 10th

Well, I don’t know what to say a bout today……I guess it went pretty good.  Jacob didn’t have much going on today.  They just had him on fluids all day.  At about 1:00, they gave him a blood transfusion only because we’re going home and they wanted to make sure that we could stay there for the full week and a half instead of having to come back in a week due to low hemoglobin.  Then at 5:30, he had his last dose of chemo.  He felt okay all day, just tired.  He did throw up a couple more times last night, but both times were because they tried to get him to swallow pills and about as fast as they went down, they came back up.  So, tonight he did good until we left and got down to the parking garage and then he got sick and then once on the way home.  He pretty much went to sleep right after we got back to my sisters.  Hopefully he’ll feel good in the morning.

We had the opportunity to leave by 6:30 tonight, but we didn’t leave till 8:00 because Jacob didn’t want to leave until the therapy dogs came by.    He got to see 3 different ones tonight.   One cool thing was that one of the ladies that came by with a dog came in the room and said “Are you Jacob from the U.P.?”   He said yes.  She then proceeded to tell us that her granddaughter goes to school with Jacob.  Her name is Sage and she’s in 2nd grade.  How cool is that?  What a small world!  So, hello to Sage out there and your family.  We hope to meet you someday soon!  🙂 

On another note, we got home tonight and Caleb isn’t feeling well.  His guts are not feeling good and I guess he’s been in the bathroom several times today.  Hopefully he doesn’t have this bug that’s been going around.  Please pray that he feels better in the morning.  That could definately put a damper on going home tomorrow.  We may have to now wait until Thursday.  Hopefully no later than that.  

Please continue to pray for Jacob’s healing and now for Caleb’s.  You can’t imagine how bad we want to go home and sleep in our own beds.  Hopefully they’ll both feel better in the morning and we can be on our way.  Please pray that we will also have safe travels.  Thanks again for all your prayers!!  Hope to see a lot of you soon!  God bless you all! 

Monday, May 9th

Sorry for not writing for a few days.  Was a little busy and then last night I couldn’t get on-line for some reason.  Let’s see, where do I start……Friday morning, Jacob’s friend Trisha came for a visit for a few hours.  Her parents had some business to deal with over by Detroit, but they made a round about trip to come see us.  Jacob had a great time with Trisha as did I with her parents Judy and Dennis.   After that, I could tell Jacob was a little bit down in the dumps.  I think it made him realize just how much he was missing all of his friends back home.  In the afternoon, we decided to go into town and do some Mother’s Day shopping to help take our minds off of things.  My sister Rachel helped Jacob do his shopping for me.  That made him happy!  On the way home, I was talking to Ken on the phone and we were chatting as we pulled up to her house and there was a vehicle in her yard, but was in the shade of her barn so I couldn’t tell what color it was.  I was telling Ken that some stranger was there until I realized that it had an Alaska license plate on the front (our van).  We all screamed when we realized it was him.  What a surprise!!!  He is such a stinker!  I’m surprised that I remembered to put the van in park before I jumped out.  ha! 

We ended up having a wonderful weekend – just being together.  Saturday, my parents camed down and my sister Liz and her family came over along with my brother Neil and his family.   We ordered pizza and just had a great time.  Sunday was just the four of us.  We went out for brunch, went to a park where the boys could play, went and got Dairy Queen (yummy!), went to another park at a fish hatchery and  the weather was gorgeous!  That made it the best Mother’s Day EVER!!!  Ken had to leave at 3:00ish.  It was a short trip, but better than nothing.

Jacob and I had to be at the hospital at 10:30 this morning to get his blood counts checked.  They were pretty low on Thursday, so I was nervous, but hallelujah, praise the Lord!  His white blood cell count was high….over 33,000 high!!!  Do you know what that means???  WE GET TO GO HOME LATER THIS WEEK!!!!!  Yippee!!!  I have not been home since March 23rd and Jacob since March 22nd.  We are so excited!  Can you tell?  ha!  Anyway, we are here at the hospital, Jacob got his first round of chemo earlier of 3 different medicines and he’ll have 1 more tomorrow afternoon and then we are out of here.  Hopefully he’ll feel good enough to drive home on Wednesday, if not we’ll leave Thursday.

He did get sick right away when he started chemo.  Very strange since I don’t think the chemo even had a chance to make him sick.  He told me it was from the disgusting hospital beans.  🙂  I don’t think I can argue with him there.  He’s been doing good ever since and hopefully he’ll feel better tomorrow.

Thank you for all of your prayers!  As we all can see, they work wonders!  God is making miracles happen and I know He’s not done with them yet!  Please continue to pray for Jacob.  Please pray for his healing, pray for him to have minimal side effects from the chemo and that he’ll stay on track so we can be home for good sooner than later.  Also, please pray that his walking and running will come back 100%.  He wants to run so bad!  I know he’s getting better every day.   You are all such amazing people….thinking and praying for us so much!  We are so thankful for all of you!!!

We are hoping to make it to the benefit dinner for Jacob on May 21st.  Hopefully we can see a lot of you there!  🙂

Thursday, May 5th

Well, the clinic visit didn’t quite go as well as I would’ve liked. Jacob’s white blood cell count was quite low. The lowest it’s been so far, but it’s jumped up over the weekend before, so I have no reason to believe it won’t happen again. At least that’s what I’m praying. Thankfully things went well when they had to access Jacob’s port. I didn’t even see a tear in his eye.

I wasn’t surprised that his wbc count was low. I could tell between yesterday and today that he wasn’t quite himself. Definately tired and he looked pale. Hopefully he’ll start looking better over the next couple days.

Well tomorrow one of his good friends is going to stop by for a couple hours tomorrow. Her parents have to come down for business. Jacob is excited! He hasn’t Skyped with his class in a couple days from not feeling the best, so that’ll be good for him.

Please continue to pray for Jacob’s healing.  Also please pray that he’ll be able to walk well again soon.  It’s really bothering him that he can’t get around good and run with his brother and cousins.    And of course, please don’t forget to pray for his wbc count to go up for Monday.  You can’t imagine how bad we want to go home next week.

Wednesday, May 4th

Today was rather uneventful, but sometimes that’s a good thing.  We didn’t do a whole lot – school work, yard sales and just enjoyed the great outdoors on a beautiful day.  Jacob was in a pretty good mood all day, although he did have a little bit of a meltdown during math, but I’m getting used to that.  🙂 

We were supposed to head to Grand Rapids today for physical therapy, but Mary Free Bed called us when we were half way there and told us that they had been talking to the hospital and it would make more sense for Jacob to get his physical therapy there instead of Mary Free Bed since we’re there so much.  What a great idea!  So, with that, our appointments for today and tomorrow were cancelled.  We do, however, still have to head into Grand Rapids early tomorrow morning to get Jacob’s blood counts checked.  Please be praying that they are good so that they can go ahead and give Jacob chemo on Monday.  Not that I want to rush it, but I would love to go home next week and if they have to postpone the chemo, that just throws everything off.  And we are missing Ken something fierce.  🙂

I guess this post tonight is going to be short and sweet.  Not too much to report tonight.  Please just keep on praying!  I believe they are making miracles happen.  God is so awesome!!!  I just know he’s working in so many lives right now.  Not just ours!

Tuesday, May 3rd

Today was so much better!  I am so thankful for that.  I guess I have to remember that every day is not going to be perfect.  Jacob is going to have a bad day here and there, right?  He’s only human and I think he’s doing better than a lot of adults going through the same thing. 

Well, this morning we headed off to Grand Rapids.  Today is my niece Abbie’s 12th birthday and she wanted to go to the Grand Rapids Public Museum.  We had a blast!  It was very interesting, although my sisters and I decided that we’ll have to go back sometime soon when we can actually take the time to read all the information on the exhibits.  The kids were just so excited, they were rushing through.  It was fun!  We finished out the day with the birthday party at my sisters.  It was so nice having the whole family together.  Wish Ken was there!  🙁

Jacob pulled me aside this afternoon and told me that he loved me so much and that he was sorry for getting upset yesterday.  He said that he’s just sick of being poked, feeling tired and getting sick.  He told me that he doesn’t really want to die and that he loves us and his life with us and he was just frustrated.  He also said that he’s sorry for fighting with Caleb lately and it’s only because he’s frustrated from the cancer.  What a kid!!!  I just think he is beyond his years and so amazing!  I told him that all those feelings are normal and he’s loved so much and that it’s okay to have a meltdown.  He deserves it!  I know God is working in his life – in our life!

Please continue to pray for Jacob and the rest of us!  We have to head back to Grand Rapids tomorrow for physical and occupational therapy.  Then we’ll be heading back Thursday to get his blood counts checked and more physical therapy.  Please pray that his numbers are up so that Jacob can continue with chemo next Monday.  We are hoping to stay on schedule for many reasons, but one being  that we can go home to the U.P. next week for a week or so.  We definately need that!  Also please pray for his cancer to be gone and the side effects from the chemo to be minimal.  We appreciate all your prayers and messages!  Please keep them coming.  🙂

Monday, May 2nd

Today had it’s ups and downs.  It was busy with getting the kids caught up on their homework.  That took us until lunch time.  Then Jacob was able to Skype with his class for about an hour and a half.  I didn’t sit with him through the whole thing, but I heard him giggling quite often.  I think he enjoyed himself tremendously.  I think Skyping will be good therapy for him over the next year.

Jacob did end up having a meltdown this afternoon.  I just hate those!  He certainly has every right, but it’s just heartbreaking!!!  Who wants to hear their child crying and say that they hate everything that they’re going through and they just want to die.  That heaven would be so much better.   This is all while he’s practically hyperventilating.   That’s enough to ruin your whole day.   I know that it’s probably going to happen from time to time.   He’s done so good so far.  I guess I can’t expect him to be in good spirits all the time.  It’s hard not to wonder if we’re doing the right thing…..that is why I have to put all my trust in God!

Thankfully this evening went much better.  He was calm and relaxed.   Tomorrow will be much better.  His cousins birthday is tomorrow, so we’re going to a museum in Grand Rapids and  out to lunch.  I know the kids will have a blast.  That will help Jacob get his mind off of things and mine too.  🙂 

Please continue to pray for Jacob.  Not only for his healing, but his anxiety and fear.   Thankfully this isn’t an ongoing thing, but when it hits – it’s not good!   We’re not going to allow satan to tell him lies and fill him full of fear.  God is bigger than all of that!   I could also use your prayers in moments like those.  It’s a helpless feeling!  We are so thankful for all of you!  You are truly amazing people and such a blessing!

Sunday, May 1st

I wasn’t too sure about what today was going to bring.  Jacob got up this morning and threw up within the first hour.  Kind of strange since he hasn’t had chemo in a couple days and since he did pretty well yesterday.  Thankfully that was the only time, but could tell he just wasn’t himself.  It took a while to get him to eat, but finally got him to drink a smoothie filled with lots of good stuff and then he was good to go.  Still pretty tired, but better.   He ended up “helping” his Uncle Kyle dig a hole with the loader.  He thought that was pretty cool!

This afternoon, Jacob’s Aunt Lisa, Uncle Greg and cousins came over.  Also, Grandma Myrna and Papa Ron came down for the day.  We had a very nice visit.  It’s bittersweet being here.  On one hand, it’s nice to be here with my sisters and their families, my brother and his family a 1/2 hour away and then my parents only an hour and a half away.  But on the other hand, we’re down here for the wrong reason and wish we weren’t here at all.  As my sister said, “We’ll never get a chance like this again to all be together for a year, so let’s make the most of it.”

This evening was pretty quiet.  After all the company left, Jacob, Caleb, Jayden, my sister Rachel and I sat around the dining room table and played a board game.  I lost!  🙁  We had a good time though.  🙂  Those are memories that can never be taken away. 

We will have somewhat of a busy week.  Still not sure of Jacob’s physical therapy schedule.  They told me they mailed it last week, but I never got it.  Hopefully they don’t have an appointment scheduled for tomorrow.  Not really wanting to run up to Grand Rapids last minute.  It’s an hour drive one way.  We will have to go to the clinic on Thursday to get Jacob’s blood counts checked.   And hopefully we’ll find time each day to Skype with his class.

Please continue to pray for Jacob.  I now it’s going to be a long year, but I hope you’ll think of him often.  Pray for his healing, that he will have minimum side effects, that he will continue to have a positive attitude through this ordeal, that he will be able to walk and run around again very soon and that he will continue to put his faith and trust in God.  I guess you could pray that for Ken and I too.  🙂

We are so thankful for all of you, your messages and prayers!  I could never thank you enough!!!