Posted below are the most recent updates on Jacob and his condition. If you wish to receive email alerts when new information has been posted, enter your email below.
I’m going to make this short tonight since it’s getting late and Jacob and I have to get up early….
Today was a good day. Radiation went well. He’s getting a tiny bit of redness on his back, but it’s so faint that it’s hard to tell if it’s from leaning on his back or from the radiation. Tomorrow will be week 2 done. Only 3 more to go. Glad it’s going by so fast. Can’t believe it’s almost the end of January already. It can all fly by till the middle of June when Jacob’s done. Sorry, I’m sure most of you don’t want that.
We went to our Pastor’s parents house for lunch after radiation today and had a good time visiting. Thank you Taylors for having us. You spoiled us with dinner and Jacob with treats! After that, just came back to the hotel and rested. We did finish a 700 piece puzzle that we started working on yesterday. Hey, ya gotta find something to do other than watch t.v. all day. Then I started packing while Jacob did homework.
Tomorrow we have to be at the clinic at 7:30 to get Jacob’s blood counts checked again. His platelets were on the lower side, so they’re thinking that they might be lower tomorrow and need a transfusion. We’re hoping not of course. If he doesn’t, then radiation is at 8:15 and we’ll be on the road by 9:00 to head home. Yippee!! We miss Ken and Caleb so much so can’t wait to get home and spend the weekend with them. Hopefully the weekend goes by slow.
Well, I must get to bed. Please pray for Jacob that his counts are on the way up tomorrow. Also, please pray for safe travels for us as I know the Green Bay area is supposed to get a few inches of snow tonight through tomorrow morning. Not sure about the U.P. as I haven’t checked on that.
Thanks again for all of your prayers! You wouldn’t believe how well Jacob is doing. Thank you Jesus for taking such good care of Jacob! We love you Lord!!!
P.S. I will try to post pics soon. My new phone is a cheap one and can’t transfer pics, so I need to remember to carry my camera. 🙂
Well, today didn’t go even close to what I had planned. I guess that’s just God reminding me that He is in charge and I’m not. 🙂
We got to the hospital at 10:15 so Jacob could get his blood checked. That wasn’t the easiest and they had trouble getting the needle in his vein. We waited about a half hour before the Doctor came in to check Jacob over and found out that his counts were low. Very low! His wbc count was 200, so he’s neutropenic. All the rest of his counts were okay, but his hemoglobin was lower than what they would like during radiation. It was 9.1 and normally I would be thrilled with that, but they need it to be at a 10. So, they had to poke him again to get a type and cross (hopefully I’m saying that right) so they can match up the blood to a donor. This time they accessed his port so that he would be able to have the transfusion done through that. We then headed down to radiation and was done within a half hour and then went back upstairs to the clinic. We had to wait awhile, but they got him hooked up and ended up being there for about 3 hours. I can think of several other things I rather be doing, but it’s not like we had anything else going on.
On a good note, the nurse practitioner from radiology made us dinner. Baked mac n’ cheese and chocolate chip cookies for dessert. Isn’t that amazing? God just keeps on putting amazing people in our path to bless us. By the way, it was delicious!!
Another blessing, school was cancelled for today and tomorrow, which is great for Caleb but not for Ken. He was panicking a bit since he can’t take a day off of work. So thank you Amanda and Bob for taking Caleb today and tomorrow! And thank you Judy for taking Caleb last Friday when there was no school! We are so blessed to have such amazing people in our lives!!
Since it was so stinkin’ cold today, Jacob and I came right back to the hotel once we left the hospital. There was no checkin out Green Bay today. Just snugglin’ in our warm hotel room. 🙂 Hopefully the weather is a little better tomorrow. Just radiation at 1:00 and that’s it! Who knows what the day will bring???
We had a wonderful time at home! It went by too fast though. We got home around 6:00 on Friday. Roads were pretty good up until we got past Perkins and then they were snow covered and got worse as we got closer to home. Praise God, He kept us safe. Jacob was so hyper! Actually, both the boys were. Lots of wrestling and craziness going on. It was fun to watch! 🙂
Saturday, Caleb had his first basketball game. He plays Upwards at Lake Superior Christian Church. It’s a program where not only do they teach basketball, but God’s word too. Wonderful program. This is Caleb’s 3rd year of playing. He’s on the Pistons this year and loves it. They won on Saturday 14-10 and he got a couple of baskets, so all is well in his eyes. 🙂 Jacob decided to stay home because he was just loving being home. Can’t blame him! Afterwards, we all went ice fishing out at Bass Lake. Even brought our pug, Katy. Only catch and release, but had a blast! I wasn’t sure if Jacob would want to go, but he did and had fun too. We were out there for a few hours and loved every minute of it. Ken’s friend Luke had his shanty out there, so that’s why I loved it. I’m not good with the cold, but give me a shanty with a wood stove in it and I’m good to go. 🙂 That’s my kind of fishing!
Sunday was a lazy day. We didn’t end up going to church since I didn’t sleep good and had a headache. We just layed around in our pj’s and watched movies all day. It was certainly too cold to go outside. So glad we got the fresh air Saturday. It might sound boring to some, but it was fun with just the four, make that five, of us just being together. I cherish these moments. But soon, it came to an end. It went by way too fast!
Got Caleb off to school this morning. So hard to leave him again. Especially when there are tears! 🙁 Hopefully this week goes by fast. We left our house at 10:45. Got to Green Bay for Jacob’s 1:00 radiation appointment and was done by 1:30. Now what???? Almost wish I had it in me to get back in the car and drive home. Don’t think it would be too efficient with the gas prices to be doing that everyday. Tempting though!
Jacob and I then went to get groceries and checked in to the Days Inn. Thank goodness no more Travelodge! Each room has kitchenettes, so we can save money and make most of our meals. We’re getting pretty sick of eating out. And we’re SO happy the rooms are nice and clean!! Bonus!
Jacob continues to feel and look great! We are so happy he’s getting such good care here. God is so good! He’s blessed us so much over the past couple of years! And keeps on giving!
Thank you for your continued prayers and support! Your prayers mean so much! We are so thankful for each and every one of you. 🙂
Our first week of outpaitent is coming to an end. Yay! Jacob has done great this week. No nausea or vomiting! Praise God! The radiation is going good also. No side effects as of yet. Hopefully they’ll be at a minimum. That’s what I’m praying anyway. It’s been a busy week. Usually we’re at the hospital for at least 5-6 hours, but they’re getting faster everyday. We’ve also been keeping busy by walking around the mall or checking out stores that we don’t have at home.
We haven’t been sleeping the best. The hotel we’re staying at has paper-thin walls and isn’t the cleanest. The American Cancer Society got us the room for free for the week. We’re very thankful, but will never stay here again. Unfortunately we have a family staying in the room above us and sound like a herd of elephants. They even vacuum around 10:00 every night. Not sure what that’s all about, but I think we’ll try the Days Inn next week. Praying we’ll get better sleep over there. It’s right around the corner from the hospital and they have kitchenettes which I’m really happy about because I am already sick of eating out. I just want a home-cooked meal.
So, we have 4 weeks left of radiation. That’s 20 treatments and 6 rounds of chemo left. PTL! I hope he continues to do as well as he has been. Please continue to pray for him! We know the prayers are working as we see evidence of that every single day.
Happy 8th Birthday to my nephew Jayden!! We love and miss you lots!
Jacob’s MRI was great! The doctors were happy with all of Jacob’s tests and scans. His lungs look great too! Praise the Lord!!! We enjoyed our time at home, but it went by way too fast. We had a busy week and then we had to head to Milwaukee on Friday to meet with Jacob’s oncologist. We decided to stay the night and tried to make the most of being out of town and had to check out some of the local attractions. We got home late Saturday night, but had a great time just being together as a family. Thank you to the Pages for watching our Katy! We really appreciate it! We also got a surprise visit from my brother and sister-in-law yesterday. So that meant that we got to see my sweet nephew and niece that we don’t get to see very often. They stayed the night, so I was able to spend the day yesterday smooching on their sweet cheeks! Wish we would’ve had more time, but some is better than none.
Dropped Caleb off at school this morning and left from there right to Green Bay. Barely made it to Jacob’s appointment on time. Thank goodness the roads were dry. He had a 10:00 appointment and started his 7th round of chemo. He’s halfway there! Yippee! He did really good with that and also started radiation today. He will have radiation Monday thru Friday for the next 5 weeks. Please pray that he will have minimal burning and minimal radiation and damage to parts that aren’t supposed to be radiated. After radiation, we headed back up to the clinic and Jacob got a transfusion. His hemoglobin was a little low.
Tomorrow morning we will be heading back to the clinic at 8:30 for chemo and radiation again at 1:00. Friday will be an earlier schedule, so we should be back home around 4:00 to spend the weekend with Caleb and Ken. I hope it goes by quick, because I am not a fan of motel living. 🙂 Although it’ll probably be a lot better than the hospital and a lot better sleeping too! 🙂
We are so thankful for all of your prayers! God bless you all!
Great news……PET scan was CLEAR!!!!! Praise the Lord! We are ecstatic!! Actually, when I told Jacob, he said calmly, “Ya, I knew it would be.” Wow! Faith like a child, right? I wish I was like that all the time. 🙂 He is currently getting his MRI. Hopefully we’ll be done soon. We were supposed to be out of here by 4:00, but obviously that’s not gonna happen. We’ll shoot for 5:00 then. Well, as long as we get home safe and sound. Please pray for safe travels! I will hear something about the MRI tonight. The doctor here told me if I didn’t hear from him before I went to bed tonight to page him so we wouldn’t have to go through the weekend without knowing results. Even though we have the best news ever, they are wanting to make sure that the hardware in his back and the surgery site is still good.
Well, gotta go get packin. Jacob just got back and we want to get the show on the road! Thank you everyone for your prayers! God is soooo good!!!! 🙂
We are back in Green Bay! Happy New Years to us! 🙂 It was so nice to be home over the last couple of weeks. We had a wonderful Christmas! Just being home and together was enough, but we had several blessings to make it even better. One was that we had a local church in Skandia, Community Covenant Church, come out to our house and sing Christmas carols to us. I didn’t even know people did that anymore. It was awesome! Caleb really enjoyed it. As we stood in the doorway and listened, Caleb insisted going outside and standing on the porch to hear them better. He stood there with the biggest smile on his face enjoying every second. He looked so proud like they were there just to sing to him – like he was the center of attention. It was adorable! I will never forget that. 🙂 Jacob, on the other hand, kind of hid behind Ken and I not wanting to be noticed. 🙂 Another blessing was that some family from the Green Bay area blessed the boys with a bunch of presents for Christmas. It was through the hospital here. What an amazing blessing! I am still in shock! We probably will never know who they are, but they made 2 boys very happy!!! Thank you to whoever you are – our secret Santa. 🙂
Jacob stayed healthy the whole time we were home. I was a little nervous because his white blood cell count was down so low pretty much the whole time and just went back up over the weekend. Thankfully no colds or fevers. He’s a trooper! Caleb’s 9th birthday was yesterday. So on Friday, he had his birthday party with his friends and had a sleepover. All went well and not too much craziness. In the meantime, Jacob and Caleb’s Aunt Kim and Uncle Dave came up for a surprise visit. We knew they were coming, but the boys had no clue. You should’ve seen the look on Caleb’s face especially. He just stood there with his mouth wide open. 🙂 We celebrated Christmas again with them and it was nice having them there for Caleb’s birthday too.
We left early this morning for Green Bay. What makes it better is that Caleb is with us. Yay! Sad we had to leave Ken behind. 🙁 They were able to start chemo earlier than normal – at about 1:00. Jacob is doing very well, but since this is the 5 day stay with Ifosfamide and Etopiside (the one he’s allergic to), as soon as they give him the Benadryl, he’s usually zoned out for the rest of the day. We do have a busy week, however, with tests and scans. He’ll have PET scans, CT’s and a MRI done along with the radiation simulation to get ready for radiation which will probably start on January 14th. Next we will be heading down to Milwaukee next weekend to meet with Jacob’s oncologist to go over the results and to decide on a plan on what to do from there. We’ve pretty much decided what route we want to take, but we’ll still hear them out.
Jacob is getting his 6th round this week. Only 8 to go. It’s hard to believe that we’re there already. This is where we pulled him out of treatment last time to save his life. I am just so amazed at how great he is doing this time. We are so thankful that God has blessed us with these great Doctors and Nurses here in WI where they actually care about the childs health and they’re not just out there to make money and boost their egos. They are taking such good care of Jacob. I am so happy he’s doing so well. Thank you Jesus!!! I just hope other children aren’t suffering at the hands of the doctors at the G.R. hospital like Jacob was. We will have to lift them up in prayer and remember that God is in control!
Child Life came in earlier to give the boys noise makers, party hats, silly glasses and streamers to hang up for our own New Years Eve party, but they were both out at 9:00 cheese time. I’m not too far behind. 🙂 I hope you all had a wonderful Christmas and cherished every minute with your children. I also wish you all a Happy New Year!!! May you all have happiness, good health and be blessed this year.
Please keep Jacob in y0ur prayers this week and next as he has his tests and scans. I will let you all know when we have the results! God bless!
Back in Green Bay once again! We all had to get up early this morning to get Caleb on the bus at 6:50. My poor baby! Jacob and I left right away as we had to be here by 9:30 cheese time. Jacob had an EKG and ECHO this morning before he was admitted. They wanted to check on him again since they haven’t since October. The reason for that is that one of the chemo drugs he is getting – Doxorubicin, is very hard on the heart, so they want to monitor it. His heart is not functioning as strong as it was in October, but still in the “limits”. Not what I wanted to hear, but trusting God will take care of my baby. Thank goodness that this is the last cycle of Doxorubicin that he will ever have. And I mean EVER! There is a lifetime limit of that stuff and he has met it. Poor little guy!
Anyway, after all of that fun was done and over, Jacob was admitted for his 5th round. Can’t believe how fast this has gone by. It’s amazing how fast it goes when the doctors and nurses are taking care of your son and he’s not sick and nauseous, losing a ton of weight and wanting to die. I am just so very thankful for these amazing people here in WI! I think about it everyday – just how well he’s thriving! His weight fluctuates, but he has not lost 1 pound! PTL!!! He told me a couple weeks ago that his back hasn’t felt this good in a couple of years. Not even after the first surgery. So much to be thankful for! Sorry that I’m still stewing so much. Sometimes it’s hard to not go there – knowing how well he’s doing and knowing what hell he had to go through before. So….he did get his Doxorubicin, Cyclophosphamide and Vincristine and is done for the night. All went well and he’s feeling great! He was craving graham crackers and milk, so that’s what he’s currently snacking on. 🙂 Tomorrow he’ll only have the Doxorubicin and some heart protectant and then we’ll be on the road again heading home. 🙂
Last Thursday, Jacob’s counts were horrible, so Friday he had to have a blood transfusion. Originally Marquette General said they wouldn’t accept him as a patient for transfusions when Milwaukee called and asked, but Green Bay must’ve buttered them up because they finally agreed. PTL! All went well, but we were there for over 5 hours. Better than making the trip down here to do it, right? The rest of our time at home went well, but flew by. It was busy, but good. We did have a pipe break under our sink when the dishwasher was running, so that was fun to clean up. 🙂 On a good note, we had a good family friend, Ryan stay with us for most of the week. Thank you for coming Ryan. The boys had a blast with the nerf gun fights again! 🙂
Looking forward to being home for 2 weeks. We don’t have to head back until New Years Eve. That will be for 5 days. Our last round of Induction and then they’ll do scans to see where Jacob’s at. The docs here did offer to move his treatment back a couple of days if we wanted to be home for New Years, but Ken has to work, so there’s really no point. I’d rather be home for the weekend when he’s off of work. Plus, Caleb gets to come with us! As long as he’s healthy, he’ll be staying with us at the hospital all week. I was shocked when Child Life said they encourage it. That they would prefer the whole family be here together to help the patient get better. Wow…what a concept! I remember getting my butt chewed for bringing Caleb to clinic one day with me to get Jacob’s blood checked in G.R. I have to say, this hospital is amazing! I’m pretty excited to have both my boys with me. Wish Ken could be with us too, but gotta pay the bills somehow, right?
We are so very thankful to all of you that have blessed us. Recently and in the past! Thank you Crystal and co-workers at Northern Michigan Bank! Thank you Lake Superior Christian Church! And thank you Outhouse Classic Crew! Your generosity this past week blessed us tremendously!!!! Also thank you to those that made donations on our website. 🙂 God has done so many amazing things in our lives over the past couple of years. Even though it may look crazy, chaotic and even horrible at times from the outside – and believe me, sometimes it is – we are putting our faith and total trust in God! He will never let us down. He knows whats best for us – for Jacob and even though we think we might know, we don’t. Only God knows. I have no clue how people go through stress and tragedies in their lives without having a personal relationship with Jesus Christ. But I’m thankful everyday that I do. 🙂
I’m hoping to write again tomorrow, but it never goes the way I plan. I’m also hoping to write again before Christmas, but if I don’t, we wish you all a very Merry Christmas and a Happy New Year! Make sure you hug and kiss your children and spouse just a little bit more and make sure you tell them that you love them. 🙂
Yesterday all went well. Chemo went just fine. It started around 4:30 as they move it up 2 hours each day. Jacob didn’t feel like eating much, which is understandable, but I really wanted him to eat something, so I said if you could have anything to eat in the whole world, what would it be? His answer? Rotisserie chicken. So off I was on a mission. The nurse told me there was a Super Value just a couple of blocks down the road. I asked her to give me a second option “just in case”. She said that there was a Wal-Mart, but several miles down the road in the opposite direction. Off I went. If my boy wants rotisserie chicken, then rotisserie chicken he gets. 🙂 I stopped at the Super Value. Do you think they had any? Nope. All out, but the worker told me that they would have more in an hour. I certainly didn’t want to wait around, so I asked where the next best place was. Austins – about 4 miles further down the road. Do you think they had any? Nope. All out. So off to Wal-Mart I went. All they way back to where I came from and then off in the other direction. Thank goodness they had some left. When I got back to the hospital, Jacob said “I’m not really in the mood anymore for chicken.” I just stared at him. He said “Just kidding!” Real funny! He almost saw a grown woman cry. 🙂 It must’ve hit the spot because he ate about 2/3 of it. That boy chowed down!
Today was kind of busy. A local artist came in from a program called HEAL. She had Jacob paint the same painting on two different canvases – whatever he wanted. He painted a beautiful sunset with the silhouette of trees. It was abstract art. It was fun to watch him paint like that. Usually he is such a perfectionist, trying to make everything just so, but she encouraged him to paint differently. He had a huge smile on his face the whole time as the paint was splattering everywhere. He had a blast! Kim the artist brought her dog with her too. Cree is a Hungarian Puli. Ya know, those dogs that look like they have dreads? Anyway, Jacob got to keep his favorite out of the two and then she takes the other and auctions it off at a benefit in the spring. He’s looking forward to painting with her again at his next 5 day chemo stay which will be at the beginning of January. He keeps staring at his canvas. He is so proud! 🙂 We also had the privilege of having a new friend stop by. Bonnie Taylor (the mom of our pastor back home) came and visited – mostly during the time the artist was here. We didn’t get to chat a whole lot, but will hopefully get to meet up again next time we’re down.
Also got a call from school today. The secretary told me that she had Caleb in the office. He had sprained his ankle at lunch recess. Poor little guy! Of course Ken was at work in Munising, so I called our good friend Judy McGuire and she was sweet enough to go pick him up and bring him back to her house until Ken got home. I have to admit…when I got the phone call, I assumed he did something bad. I hate to say that I was relieved a bit when she said that it was a sprain. Does that sound mean? 🙂 So thankful for the McGuires. They have been such a blessing to us over the past couple of years. We love you guys! I spoke with Caleb earlier on the phone before he went to bed and he said it still hurt a bit, but at least the swelling went down.
Chemo went well. As good as can be expected. Still no problems and he feels just fine. He at a really good breakfast, but didn’t feel like eating much the rest of the day. He did a lot of snacking though. Mostly fruit. I did have to go on a string cheese hunt earlier. Thank goodness the cafeteria had some. I thought I was going to have to venture out to the store again. He ate 2 and was happy. Tomorrow chemo will start at 12:30. Not sure what kind of exciting stuff we’ll have going on. I’m sure Child Life will have something to keep him entertained. I love how this hospital has that small town feeling. He gets so much more attention from them that way and he loves it. Earlier, one of the Child Life Specialists brought in two autographed Packer footballs. One for Jacob and one for Caleb. He was so excited! I could see the dollar signs in his eyes. Ha!
Thank you for thinking of us and praying so much for Jacob! God has been so good to us. He is taking such good care of us. I have to stress or worries. No anxiety. Well, maybe a little here and there, but then I remind myself that God will provide. And guess what? He always does. So thankful for family and friends too! We are so blessed. Prayer request other than the obvious…..Jacob will start radiation in January. His oncologist is checking into whether Marquette will be willing to do the radiation there. Praying that they agree to it as it will be Monday thru Friday for six weeks. Plus each appointment is only about 15 minutes long, at the most, so it would be wonderful if his appointments could be right in Marquette. That’s a long time to be away from Caleb and of course Ken. 🙂 Even though we would try to be home on the weekends, six weeks would be hard on all of us. Thank you all! God bless!