UPDATES


Posted below are the most recent updates on Jacob and his condition. If you wish to receive email alerts when new information has been posted, enter your email below.



Thursday, March 7th

Before I forget, I must tell you all about what wonderful things the hospital did for Jacob on his last day of radiation.   First thing Friday morning, on the 15th, Jacob had radiation.  When we were getting ready to leave, the ladies gave not just Jacob, but Caleb too, Avenger shirts and each an Avenger Mask.  Jacob got Iron Man, since his nickname is Iron Man and Caleb’s is Hulk.  🙂  They also gave us a couple of gift cards.  We’re gonna miss them.  They were all so sweet and wonderful.  We had to stop in there to see them since we haven’t seen them in a couple weeks.  We may have to do that each time we come down for chemo.  🙂  Dr. Leenstra, Jacob’s radiation oncologist, was also very nice and thankful that God blessed us with such wonderful people.  Whenever Dr. Leenstra would see Jacob, of course his first question was how Jacob was doing.  The second was “Is everyone being nice to you?  If not, you better tell me.”  🙂   I don’t think anyone there has a mean bone in their body.  🙂

Anyway, after we left radiation, we went upstairs for chemo.  We got settled in and pretty soon, the nurses and Child Life girls came in singing, clapping and holding a sign, “Way To Go “.  They also had presents – not just for Jacob, but for Caleb too (don’t forget that Caleb was with us that week).   They told Caleb that the celebration was also for him for being such a brave brother while his Mom and brother were away so much for radiation.  Is that awesome or what?  I wish I would’ve thought to take pictures.  Darn it!  They also had cake.  We just love everyone at this hospital.  They care about their patients (and siblings) so much!!!

Ok…enough of old stories.  🙂  So thankfully, we get to go home tomorrow.  It’s been a long week.  I don’t know why, but time has been draggin’ this week.  Probably because Jacob’s been tired and not up to doing very much.  His energy level comes and goes, so ya never know.  Yesterday, I made him walk around the mall with me because my butt hurt from sitting around so much the past few days.  At least that was a little bit of exercise.  Maybe that helped, because he was actually quite energetic today.  Once we left the hospital, we got some lunch and headed to the National Railroad Museum.  Jacob had a blast!!  It was pretty interesting and I’m sure we’ll have to head back again before our trips are over in June.

Speaking of trips back, we only have 5 more.  Yes, that’s right…..Jacob only has 5 more chemo treatments left!!!  Woohoo!!  Each treatment is 5 days long.  So exciting!!   Next time we’re here, if everything goes right, will be the 25th.  Jacob is scheduled to have scans then to make sure his treatment is working.  Please pray that it is.  They will make sure that they look at his scans right away that morning before he starts treatment.  They don’t want to keep filling his body with these chemo drugs if they’re not working.  If they aren’t, then who knows…….  Change of plans I guess.  But, we’re not gonna go there.  We’re going to continue to pray that Jacob stays healed and that his scans stay clear.  It’s all in God’s hands!!

So tomorrow we get to go home!!  We’re very excited!  Jacob will have chemo early – at 7:45.  So if things all go well, we should be home by 2:30ish.  Caleb and I are planning on going out on a date this weekend.  Not sure yet what we’re going to do, but we need some alone time too.  That will also give Ken and Jacob some alone time, which will be good from both of them.  To do something that they enjoy doing together.  At least we’ll have 2 weeks home.  I’m loving that schedule.   So much better than only 2 days at home.  🙂

Again thank you for all of your prayers and support.  Thank you Nikki D. for blessing us!!  🙂  Thank you Stacy H. for making dinner for Ken and Caleb.  It’s nice knowing that they’re eating somewhat healthy when I’m not home.  🙂  Ken’s an excellent cook, but doesn’t always have time to plan out a meal with work and all.  It’s not always easy being Dad and Mom at the same time.  🙂

Please keep the following kids in your prayers.  I know it’s a lot to ask, but they desperately need them.  Some need them more than others, but they’re all fighting cancer in one way or another.  Either dealing with the horrific treatment or fighting to stay alive:

Bella, Julia, Seth, Elijah, Halee, Uzias, Brendan, Lakin, Deven, Savannah, Isaac and Johnathon

So sad…I know it seems like a long list, but unfortunately that’s only a very small percentage of kids that are fighting this ugly fight!

Monday, March 4th

Back in Green Bay again!  Our home away from home.  Ha!  Our two weeks home went by way too fast……

Jacob handled his transfusion very well!  Thankfully no side effects or reactions.  Just a very long day.   But thankful we were in Marquette County and not 3 hours away.  🙂   When we got home from MGH, Ken and Caleb had a bonfire going.  That was so nice.  We enjoyed hanging out by the fire, laughing and just having a good time together. 

Saturday, Caleb had his basketball game.  They didn’t win, but Caleb played a good game.   Later that day, Ken and I finally got to go out on our date.  We weren’t gone too long, but got to get something to eat, have some alone time, good conversation and laughs.  It was needed, so happy we could do that.  🙂

On Monday it was time for bloodwork again.  We got his counts back late in the day and they were pretty darn good.  Jacob asked right away if he could go to school sometime during the week.  I didn’t know what to say to that.  I wasn’t expecting that kind of question, nor was I expecting him to go to school anytime in the near future.  When he first started chemo back in October, Jacob’s doctor told me not to expect him to be ready for school until the end of the year for a few hours here and there – mostly due to the flu season, chemo and being worn out from the radiation.  I could tell the last couple of days he felt better – more energetic, but still……. 

Tuesday morning, I called the secretary at the school to make sure there weren’t any major “bugs” going around and then called Jacob’s doctor in Green Bay.  He said “his counts are great, so it’s up to him if he feels good enough”.  Oh my gosh!  Jacob was so excited!  You would’ve thought we were going to Disney.  He decided to try a half day Wednesday afternoon.  He went at lunch time through the rest of the day.  He had a blast!  He decided he wanted to go all day Friday too.  He went and loved every minute!  I, on the other hand, was very anxious.  I felt like it was his first day of kindergarten.  Why?  I don’t know, but it was a very big deal for Jacob and we are so proud of him!  I think it was probably good for the both of us to get some time away from each other.  Haven’t had much of that in the past 5 months.

Not only did that boy make it through a full day of school, but Friday night we went tubing with a group from church.  We all had a blast, but I could tell he was pooped out on Saturday.  He did venture out to Caleb’s basketball game though.  They did win and Caleb had a great game.  Great job Caleb!!!  🙂  We had another bon fire Saturday night.  It was a little chilly out, but the fire felt great.  🙂 

Sunday we went to church and then Caleb and I spent some time outdoors bonding.  We played a lot of basketball and had a ton of laughs.  It was something we both needed and had a blast.  We are planning a date night for this coming weekend.  🙂 

Got to Green Bay this morning for a 10:15 chemo appointment.  We didn’t end up leaving until after 4:00.  A very long day!  Since chemo only takes a little over 2 hours start to finish, it was driving us a little crazy.  Things just weren’t working out right, but Jacob’s doing great and feeling great, so I guess that’s all that matters.  His hair is coming in more and more.  He has such a fuzzy head and his back is completely healed!  Praise God!  It got worse after we got home – started peeling, but after using a few natural concoctions, it was completely healed within a few days.   

Thank you for all of your prayers!  He is doing awesome – all thanks and praise to our  Heavenly Father!!  🙂

 

P.S.  Congratulations Caleb for being Student of the Month!!!  Dad and I are so proud of you!  🙂

Friday, February 22nd

Sorry I haven’t written all week, but I’ve been enjoying my time at home.  I’m sure you all understand.  By the way, we are enjoying our time at home VERY much!!!  It feels so good to be there more than a couple of days at a time.   Been busy though.  Bloodwork on Monday, so with that comes running errands.  I don’t like making more trips into town than I have to so I gotta take care of it all at once.  🙂  Jacob’s bloodwork was great on Monday!  Yesterday, not so much.  His platelets were 24,000.  They don’t like them below 25,000, so today we’re at MGH getting a transfusion.  His hemoglobin was low too, not yet at the transfusion level, but close.  So instead of making us come back next week too (since it’ll continue to drop), they decided to take care of it all at once.  Not how I really wanted to spend my day.  We’ve been here for 4 1/2 hours so far, but better than being in Green Bay, right?  Have to find the positive! 

Jacob continues to do really well!  His hair is still coming in.  He now has a fuzzy head and he loves it!  🙂  His eyelashes are short still, but they’re thick.  I love catching him look at himself in the mirror and the smile that he gets.   His back is doing good.  Was starting to look a little rough as it was peeling, but it never bothered him once.  We’re still beaming that it’s over.  🙂 

Not much else is happening.  Ken and I were planning on going out on a date tonight.  That won’t happen now, but we’ll do it soon.  We certainly need some alone time as we haven’t had much of that in awhile.  Actually not much over the past couple of years.  Oh well!  We’ll have plenty of alone time in a few years when the boys are grown-up.  I’m sure it’ll fly by fast!

We still have a whole other week to enjoy being at home.  Caleb only had one day of school this past week due to snow and conferences.  So glad I was around to spend time with him and make things just a little bit easier for Ken so he didn’t have to scramble trying to find a sitter.  🙂   All is well!!!!

Hope everyone is doing well and enjoying time with their loved ones!  Thanks for you support and prayers!   Will try to write again soon.

P.S.  So good seeing you today, Rachel!!!  🙂

Thursday, February 14th

HAPPY VALENTINES DAY!!!!  Hope you were all able to spend time with a loved one today.  I know that I certainly was.  I had two very handsome boys with me.  Wish Ken was with us, but at least we get to see him tomorrow. 🙂

So I have some more exciting news……TOMORROW IS THE LAST DAY OF RADIATION!!!   Woohoo!!  You can’t even imagine how excited we are!  And praise God that He has taken such good care of Jacob.  Not only is it the last day of radiation, but we get to go home and stay home for 2 whole weeks!  I get to unpack my suitcase.   That is a very big deal in my eyes.  Ha! 

Things have gone very well this week.  Jacob has continued to feel good through the chemo and radiation.  We’ve enjoyed having Caleb with us.  Even though he was bored at times, he still said it was better than school.  Ha!  We didn’t do a lot this week as Jacob is feeling more tired now from the radiation.  The symptoms could go on for at least 2 more weeks if not longer, his doctor said, and get worse as time goes by.  But we are praying that that won’t happen – for minimal side effects and that’s certainly what it has been so far.  PTL!

Today they checked Jacob’s blood counts to see if he would need a transfusion before we went home tomorrow, but guess what?  All of his numbers were up from Monday.  Even with the chemo.  God is sooo good!  So, no transfusion.  So tomorrow we have to be at the hospital at 8:00 to meet with Jacob’s Radiation Oncologist, then his last treatment, then chemo.  He is also doing so well with the chemo.  He feels great and his hair is even starting to come back in.  Very slowly, but it’s coming back.  It’s like this white glow around his head.  🙂  Hopefully we’ll be on the road by 1:00 EST.  Please pray that we have a safe trip home.  We are really looking forward to some “normalcy” in our lives, whatever that is.  🙂

Thank you again for all of your prayers!  We know they are working as I see it in Jacob every single day.  He is so happy and doing so good.  It can’t be anything but the power of the Holy Spirit working in his life.  Thank you for all of your kinds words and your donations.  Thank you Dale and Jill, Sandy G. and Brenda B. for blessing us!  We are so very thankful!!

Could you please keep a few kids in your prayers as well?  Please pray for Brayden, Julia, Bella, Deven, Lakin, Halee and Seth.  I know that’s a lot to pray for, but these poor kids fighting cancer deserve some extra prayers.  Thank you so much!

I do have a special request:  There is a family that I’ve gotten to know over the past several months.  Their 9 year old son Uzias has been battling cancer for a few years now.  He has a brain tumor that keeps coming back and his doctors are up in arms about what to do next.  Uzias’ parents have decided to bring him to the Center for Advanced Medicine and Clinical Research in NC, hoping that they can do something to save their sons life.   Unfortunately insurance does not help with this type of treatment and they are in desperate need of funds.  PLEASE pray about helping this family in some way.  Every little bit helps. 

http://www.youcaring.com/medical-fundraiser/Save-my-son-Altenative-cancer-treatment/38133

You can also read his story on Facebook at http://www.facebook.com/pages/Prayers-for-Seth/498754246826891?ref=stream#!/HelpForUzias?fref=ts

Thank you so much for considering!  Hope you all have a wonderful weekend and give your kiddos extra hugs and kisses.  🙂  Love to you all!

 

Monday, February 11th

What’s so special about this week?  Why it’s the last week of radiation!!!  Woohoo!  So very happy and so very thankful!  4 more treatments.  It’s hard to believe that 5 weeks could go by so fast.  Looking back on it, it seemed so daunting.  How were we ever going to get through it?  But by the grace of God, we did.  And it went by faster and better than we could have ever hoped for or imagined.  Of course we wish we could’ve all been together the whole time or not going through this at all, but God has a plan.  This is why we put all of our hope and trust in Him.

We made it home Friday safe and sound.  The roads weren’t the best the closer we got home, but we made it.  Caleb had been begging to go out to dinner at the Full Throttle as he loves their popcorn chicken, so that’s what we did.  Ken and Jacob took the snowmobile there, which Jacob had been wanting to do so very badly, while Caleb and I drove down there to meet them.  Seems like we do almost anything these days just to make our boys happy.  How can we say no to requests like that?    Within reason of course.  🙂

Saturday, Caleb had his basketball game.  They tied 16-16.  It was a fun game to watch and Caleb got a few baskets.  🙂  When we got home, we had a bonfire.  We enjoy our bonfires – doesn’t matter what time of year.  It was fun to hang out as a family and chitchat about anything and everything. 

Sunday – I enjoy my Sundays, but these days they are bittersweet.  I love going to church and seeing my church family.  I also enjoy a day of rest and being lazy.  🙂  But it also means that I have to get things ready to leave again the next morning.  But guess what?  Since this is Jacob’s last week of radiation, we will be home for a whole 2 weeks before we have to head down to Green Bay again.  No offense to Green Bay, but I am sick and tired of traveling.  I am drained!  I need a break.  I am looking forward to unpacking my suitcase next weekend for the first time in weeks. 

So, we are back in WI.  We got here about noon, cheesetime.  Caleb is with us this week, which makes the trip a bit easier.  Jacob is getting round 8 this week of chemo.  6 more to go after this.  His counts were fantastic!  I was unsure as his ANC needed to be at least 500 to start chemo and was around 350 on Thursday, but today it was over 1300!!  Praise God!  He sure does answer prayers.  Chemo went well and he’s still feeling good.  We then headed downstairs for radiation.  Boy, Jacob sure does love those ladies in that department.  There’s about a half dozen of them and they are all wonderful and as sweet as can be.  I think they are very fond of him also.  🙂  Every Friday, they give him a gift.  And every day, he hides from them so that he can scare them.  They know it’s coming, but they never know where he’s gonna be.  Especially the lockers.  He loves hiding in the lockers and they are always scared to open each one up, not knowing which one he’s going to jump out of.  🙂  Anyway, after that was all said and done, we had to get some groceries for the week, so we didn’t get to the hotel until 6:00.  That made for a long day.  The boys are both passed out as I write this and I think I’m ready to head to bed too. 

Hope you all have a wonderful week!  Thank you for all of your prayers.  I know I have a lot of prayer requests usually, so I appreciate you taking the time to pray for my family.  We appreciate each of you and your support.   God bless!

I will leave you with a picture of Jacob and Caleb from Saturday while we were having our bonfire.  🙂

004

 

Thursday, February 7th

Wow, is time flying by!  And I love it.  🙂  The week is almost done and Jacob’s doing great!  We’ve been keeping busy this week.  Went to the Neville Public Museum on Tuesday along with a couple stores after radiation.  Yesterday, radiaton, Menards and Fleet Farm as we needed some chicken supplies.  🙂  It’s nice I can run errands while I’m here since I don’t want to spend our precious time at home in town.  Jacob was pretty tired after all that running around.  His legs were aching last night, so thanks to my new friend Liberty, whose son Brayden is also fighting Ewings Sarcoma, suggested rubbing his legs down with peppermint oil.  That did the trick and Jacob slept like a baby.    I’m sure praying for him helped the most.  🙂  He ended up sleeping about 12 hours last night.  I can tell the radiation is finally taking it’s toll and the fatigue is setting in, but still doing so much better than I could’ve hoped for. 

This morning we woke up to a thick coat of ice on our windshield.  It was also snowing, so I certainly didn’t want to drive more than I had to.  We went to the hospital for bloodwork, radiation, got some lunch in the cafeteria and straight back to the hotel.  It is not a day to be out if you don’t have to, that’s for sure.  Jacob’s bloodwork was fantastic!  His ANC is still low, but they’re feeling confident that it will be up to 500 by Monday.  It was over 350 today and only 32 on Monday, so praying it will go that much further in the next few days.  His back is getting red.   We saw the radiation oncologist yesterday and he is very impressed how well he’s doing.  He was sure he’d be more tired, have heart burn, pain swallowing and nausea.  I love that Jacob can shock the doctor in a good way!  Only a little fatigue.  I’ll take that anyday!  🙂  He also suggested getting some cortizone cream to put on it along with the calendula cream we already use.  Hopefully that’ll make a big difference.

He has an 8:15 radiation appointment tomorrow morning and then we get to head on home.  Yay!  Hoping this weekend goes by slow.  At least we’ll have Caleb with us next week (planning on it anyway).   That’ll make it easier on all of us.  I’ll have my baby with me, Ken won’t have such a stressful week trying to get home from work before Caleb gets off the bus and Caleb will have his Mama.  It’s a win win!!!

Please pray that we’ll have a safe drive home tomorrow.  Also that Jacob’s ANC will be high enough for chemo on Monday.  We don’t want this delayed longer than it has to be. 

Have a wonderful weekend everyone!  Thank you for all of your prayers!  They are helping tremendously!!!  Praise God!

 

P.S.  In regards to my friend Liberty above, please pray for her son Brayden.  He is doing wonderful even though he’s going through treatment, but could definitely use your prayers.  He has 2 more rounds of chemo after this week.  Please support this family with your prayers and by following their posts on Facebook – Prayers for Brayden.  Thank you!

Monday, February 4th

Is it really Monday already?  Our time home went by way too fast.  The trip home went by fast and the roads were good, so it started off well.  Got home around 1:00ish to my sweet Caleb.  Poor little guy needed his mama.  I don’t think he was really sick.  As weird as it sounds, I think it was because his 10 year  molars are coming in.  Jacob’s doctor said that is quite possible, but warned me that when his upper molars come in, expect it to be worse.  🙁  I first suspected it when he told me that his “jaw” hurt and it felt good to chew on pieces of apple.  What???  I realized that made sense – when a baby teethes, it loves to chew on things to get some relief, right?  The same thing happened around Christmas too with the other side – ear ache, fever, runny nose…..  Poor little guy, when I looked inside his mouth, his gum was sticking up past his teeth to a point, just trying to break through.  Unfortunately, even though his fever was gone, we didn’t get to go out on our “date” like we had planned.  He just didn’t seem ready for that, so hopefully we’ll get to go next weekend.  Poor Ken had to make up missing work on Thursday from staying home with Caleb, so he went when we got home and didn’t get back till almost 10:30 Friday night.  He’s such a hard worker, then back up early Saturday morning to work Fridays route. 

So, Saturday came, Ken was off to work and Caleb contemplated whether he should play at his basketball game.  He still wasn’t 100%.  He decided he would go, but just sit out some of it to rest so he wouldn’t overdo it.  Thankfully Ken got home in time and off we went with Jacob in tow.  He was excited to finally see his brother play.  Ken told the coach what was going on.  Did he sit him out at all?  Not till the very last 5 minutes.  Poor guy!  I felt so bad for him.  You could tell that he was miserable.  We found out later that he kept asking the coach to sit out, but he told him it wasn’t his turn yet.  Needless to say, he didn’t feel very good the rest of the weekend.  Should’ve just kept him home!  Saturday night, we went to a benefit dinner for a man in Skandia whose house burned down.  It brought back memories – mixed ones – as it was at the same hall that Jacob’s benefit was at and a lot of the same people were there.  Hard to believe it was almost 2 years ago.  It reminded me what an awesome community we live in.  It’s small, but when something tragic happens, they are all right there to help, no matter what.  I or should I say We are still and always will be so very thankful for all the love and support we have gotten.  Jacob’s benefit dinner was AMAZING!  It was a blur to us that night.  A lot of “should have’s” as far as wishing we could’ve thanked everyone there personally, but it was not possible.  I know we thanked everyone before, but I’ll do it again.  THANK YOU!  THANK YOU!  THANK YOU!  Although we never want there to have to be a benefit or a cause for one, I know there will be and I’m looking forward to helping out with future ones.  To pay it forward.  We have been blessed so much over the past 2 years.  It’s so amazing! 

Sunday Jacob and I just went to church as Caleb didn’t feel the best, so Ken stayed home with him.  I had a hard time getting Jacob out of there as he was enjoying hanging out and talking to his buddy Drake.  Although I didn’t mind talking to my friends too!  🙂  Later, Ken and I were outside taking care of our chickens and Jacob ended up coming out too.  It was so cold, but he just wanted some fresh air.  We had a good time.  Didn’t stay out long though, but enjoyed the sunshine.  Can’t wait for spring!  🙂  There’s a picture below of Jacob with his best friend Katy.  She has been such a blessing for both the boys.  So healing for them. 

This morning, Jacob and I dropped Caleb off at school and drove to Green Bay right from there.  Went to clinic first where they checked his blood counts.  Thankfully everything was up except…..his ANC.  That needed to be at least 500 for chemo and it was only 32.  Ugh!  I was a little disappointed at first as this will push everything back at least a week, but then I realized that it’s for a reason and God has a plan.  So, just radiation this week and planning for chemo and his last week of radiation next week.  Only 9 radiation treatments left!  Woohoo!!!  His doctor said that we could wait till Wednesday and it would probably be high enough then to start, but he’d have to have chemo through the weekend then and radiation all next week, so we’d be here for 2 full weeks.   He also said that he didn’t recommend it.  He said that we need to go home this weekend and be with the rest of our family – that’s more important!  Man, what a blessing this doctor is.  So, chemo next Monday it is!

Hoping this week goes by fast.  I’m thinking I might bring Caleb with me next week.  I thought it would get easier as time went on for him, but it’s getting harder.  More tears every time.  Breaks my heart!  I’ve said it a probably a million times, but I’ll keep saying it again and again…thank you everyone for your prayers and support.   Thank you Community Covenant Church and Silver Creek Church for blessing us again!  We hope you all realize how much your support blesses us!  🙂  I will also add that we love all the messages and comments from our supporters.  They lift our spirits!  🙂   Have a good week and God bless.  Please continue to pray for Jacob’s protection from the radiation!    Thank you!

 

 

Nothing like a boy and his dog!

Nothing like a boy and his dog!

 

Thursday, January 31st

Woohoo!!  The last day of January already??  I love that time is flying by.  That just means closer to life being back to “normal”.  Whatever that means!  Jacob has continued to do really well this week.  He had blood taken today.  Everything is on it’s way up, but not his wbc’s.  Ugh!  They’re still at 700.  The same as they were on Monday.  I was a little frustrated, but his doctor told me not to expect them to be too high from now on.  He’s been through and is going through a lot of chemo and he’s also getting radiation.  His bone marrow is getting tired.  We’ll be back here on Monday for radiation, which by the way, after tomorrow, he only has 10 radiation treatments left.  Praise God!  He’s scheduled to start chemo again on Monday and if his ANC isn’t up, they’ll postpone chemo till the following Monday.  I guess it’s all in Gods’ hands, right?

Ken called yesterday to say that when Caleb got home from school, he plopped on the couch and passed out.  Caleb take a nap?  Not normal.  His cheeks were flushed, so Ken checked his temp and it was 103.  Poor little guy!  He had no other symptoms, just that.  I talked to him before we went to the hospital this morning and thankfully his fever went down to 100.4 and was 100.2 this afternoon.  It’s going in the right direction.  Ken told me that we should just stay down here because he doesn’t want Jacob to get sick.  That’s the last thing we would want.  When someone with cancer or going through treatment gets a fever, that’s a very big deal!  So, I spoke with Jacob’s doctor today about it and he said that “you need to go home for family time.  That’s very important and plus you can’t let fear take over!  If Jacob gets a cold then we deal with it.  Him being healthy mentally and emotionally are just as important, if not more.”  I love his Doctor here.  He’s so down to earth!  So tomorrow after his radiation appointment, we head for home.  Yay!!  Time to snuggle my little guy and for Mom to take over and get that little boy feeling good again.  🙂

I do have a few prayer requests (not in any particular order)….First, for Caleb to feel better so we can all enjoy our time at home together and so Jacob doesn’t get sick.  Second, Jacob’s back is getting a little pink.  Please keep praying for him that it doesn’t get too bad as radiation can burn the skin really bad to where it becomes painful, raw and oozy.  Also please continue to pray that he will have protection over the organs inside as his heart, lungs, spinal cord are in the way.  His esophagus and stomach can be damaged too.  I try to be diligent to pray Psalm 91 over Jacob everyday during radiation and I believe it is helping, but would like your prayers too please!  Lastly, please pray that we have a safe drive home tomorrow. 

Thank you all so very much and I will write again next week when we’re back in Green Bay.  Hope you all have a wonderful weekend!  Please give your kiddos extra kisses and hugs everyday.  Don’t take the moments with them for granted.  We are in contact with other families who’s children have cancer and are in a state that don’t look very hopeful.   You just never know what tomorrow will bring.

 

 

 

Tuesday, January 29th

Today went fairly well.  We got to the hospital at 10:30 for Jacob’s transfusion since his hemoglobin was low yesterday.  They finished up a little after 1:00, so we had to rush downstairs to radiation since his radiation appointment was at 1:00.  We’re about halfway there!  Yay!!!  Only 13 treatments left.  Yes, we’re counting down each day.  🙂  After radiation, he met with the nurse so she could check him over and was very impressed with how he’s doing.  Still gaining weight.  Slowly, but I’ll take that any day compared to last time.  Next we went to get an X-ray of Jacob’s back.  His surgeon in Milwaukee liked what he saw on the MRI and CT from earlier this month, but wanted an X-ray also.  I was quite impressed that the X-ray tech put a lead apron around his waste to protect his boy parts without me having to ask.  That was the first time that ever happened!  I had to commend her on doing a job well done!! 

Once we left the hospital, we just HAD to go to Target.  Jacob had gift cards burning a hole in his pocket.  Once we left there, then we HAD to go walk around the mall.  Okay, that one was for both of us.  🙂  We ate an early dinner, walked until my feet hurt and then enough was enough.  It’s amazing that Jacob is the one going through treatment.  That boy could keep going and going…..he puts me to shame!  🙂  He has energy that I could only dream of.  Back to the hotel for homework time!!!  His favorite part!  (Insert sarcasm)

There wasn’t any school back home again.  They had a couple days off last week too!  Poor Ken…trying to deal with finding someone to watch Caleb on top of everything else.  He feels like such a heel (his words) asking for help.  But I know that our friends are more than willing.  We would never have this many days off if I was home.  I’m sure of it.  Just one more thing to add a little stress in our lives.  We’re supposed to be thankful in ALL things right?  Thank you to Amanda, Judy and Michelle for always be there for us and your willingness to help with Caleb.  We appreciate you so very much!!  Ken’s just hoping school won’t be cancelled again tomorrow with all the snow they’re threatening.  There’s already no school on Friday due to a teacher workday or something like that.   I just wish I would’ve brought him with us this week.  It would’ve been better for all of us in more ways than one.   Oh well, who’s to know?

Well, tomorrow the weather’s not supposed to be very nice, so it’ll be just to the hospital and back.  No extra drivin’ for me.  I’m not sure how good the drivers around here are in the snow.  I don’t want to find out the hard way.  Thursday they will check Jacob’s blood counts again.  Please pray that his platelets and wbc are higher.  We really don’t want to postpone chemo at all which is supposed to start Monday.  That just puts us further into June for finishing.  We want as much of the summer to enjoy as possible.  Plus, that’ll give Jacob more time to recuperate before school starts in the fall. 

Also, thank you to those that leave a thoughtful message whether public or private.  It’s nice to know that there are people out there keeping up with Jacob’s journey.  We appreciate every one of them!   And of course, thank you for your prayers.  Those are the most important!  I’ve been reading Psalm 91 a LOT lately and praying it over Jacob every day during his radiation time.  I believe it is helping!  Thank you Cindy for giving me the Psalm 91 book.  It’s small enough to keep in my purse and the testimonies in the back are amazing!  I recommend this book to everyone, but especially anyone dealing with anyone that is going through something rough in their life.

That’s all for tonight.  I must get to bed. Most importantly, I must get Jacob to bed.  🙂  Goodnight and God bless!

Monday, January 28th

Is it Monday all ready???  The weekend flew by so fast.  🙁  At least we were all together as a family. 

Friday was good.  Jacob did not have to get a transfusion.  His counts were still low, but at an acceptable level, so we were able to head home right after radiation.  The roads were not the best due to all the snow we got and were getting, but the Yooper girl that I am, I just plowed through the snow – just stay out of my way!  🙂  We got home around 1:30ish and enjoyed every second of being there.

Saturday we slept in, of course.  So nice being in our own beds!  Caleb had a basketball game at noon.  There’s been question of who won the game, but I think they tied.  They restarted the time clock after half time.  Not sure if that was an accident or not.  🙂  He did get a few baskets though.  He certainly is fun to watch – well for me anyway.  Afterwards, we got some lunch and then did some much needed grocery shopping.  There was NOTHING left to eat in the house except eggs.  Good thing we have chickens!  Once we got home, we all went down to Engman Lake near our home.  Ken and Caleb had previously shoveled off a rink, so after the snow we got the day before, it needed to be shoveled again.  We brought our pug Katy with us and had blast.  Yes….shoveling!  We were there for a couple of hours and the boys didn’t want to leave, but it was dinner time. 

Sunday we went to church.  Jacob stayed home again.  Not wanting to take any chances with getting sick with his counts being low.  Once we got home and had lunch, Ken, Jacob and Caleb were off to the lake again to play some hockey.  I stayed home to do some laundry and pack.  Plus it was nice to have a moment to myself.  I love my family so much, but I haven’t had a moment to myself in I don’t know how long.  Since I usually have Jacob attached 24/7, doing laundry never sounded so good!

Of course the weekend went by way too fast.  Caleb was extra emotional yesterday, but said he didn’t want to talk about it.  I wasn’t sure if he was coming down with something or just sad we were leaving again today, but last night he finally told me that he was just plain SAD!  Poor little guy!  Just breaks my heart to leave him again.  I think I’ll take him with us again soon for the week.  Just get his homework from his teacher ahead of time.  If that boys needs his mama, then he shall.  We have to keep everyone healthy emotionally along with being healthy physically.

So, we left today at 1:00 to head back down here to G.B.  Jacob’s clinic appointment was at 3:15 to get his blood checked again.  Still low!  Ugh!!  His wbc were up a little to 700.  His platelets were down, but not to transfusion level yet and his hemoglobin was a little low and they want to keep it up for radiation, so tomorrow morning we need to go back in for another transfusion.  On a good note, radiation is still going good I guess.  No complaints so far!  Just a little redness on his back, but it’s very slight.  I hope that’s a good sign since he is almost halfway done.  11 completed and only 14 more radiation treatments left.  It sounds worse when we say 3 weeks left.  The number 14 sounds so much better!  🙂

Thank you to everyone again for all of your prayers!  God is listening.  I know it.  I will continue to thank you everytime I’m on here.  It never gets too old.  At least in my eyes.  Thank you Pat H., Bonnie C., and Brenda B. for blessing us.  You can’t imagine how much we appreciate it!  All of our readers support means so much.  We really appreciate the comments – public or private!  It helps to know that there are people out there that care and are praying for us.

Well, I’ll leave you with a picture that we took for our new friend Brayden and his family.  He also has Ewings and they live in Tennessee.  We wanted to show them our support with our Team Brayden shirts on.  They have a Facebook page, so please check it out and be praying for him and his family!

Thank you and love to you all!

 

teambrayden1