Sunday, March 24th

Where to start…….

Two years ago this past Friday – the 22nd, this whole nightmare started.  I can remember it like yesterday….  I brought Jacob into the E.R.   The 23rd, they flew Jacob and I down to Grand Rapids – that’s when the nightmare really began!  The 24th, Jacob had surgery and the surgeon wasn’t sure what it was and said it would be close to 2 weeks for them to figure it out.  Two days later on the 26th, Ken and I were brought into a conference room with Jacob’s then doctor, nurse practioners, specialists and social worker.  We were told the diagnosis – Ewings Sarcoma!  I remember is so clearly – Ken got upset and said that he “couldn’t go through that again” (his father had passed away from cancer just 3 months earlier) and walked out of the room and I started crying.  After we got the medical records from the hospital, I found in there notes that we were “difficult” when we found out.  If I would’ve known at that moment what they were thinking, that would’ve been my first clue that we were at the wrong hospital.  How do they expect parents to act when they tell them their child has a rare bone cancer??  Idiots!!  Oh well, the past is the past and I guess we need to concentrate on the now, right?

What is “the now”?  Well, we had a wonderful time at home.  Time went by way too fast, of course!  Jacob did wonderful and felt wonderful.  We didn’t really do anything too exciting, but that’s fine with me.  My “29th” birthday was on the 15th and my parents had come up for a few days, so that was the highlight of our being home.  Jacob and I hadn’t seen them since September when they made the trip to Milwaukee right after Jacob’s surgery.  Caleb hadn’t seen them since August, so it was exciting for all of us.  Of course that visit went by too fast also.  🙂 

Jacob’s counts were fairly good on the 18th.  His hemoglobin and platelets were a little bit on the lower side, but Jacob’s doctor felt confident that everything would be fine by the time he gets it checked again tomorrow.  So, since his white blood cells were good, he was able to go to school half day on Tuesday and Wednesday.  Full days Thursday and Friday.  We were so happy that he was feeling good enough to go that much!

Well, it’s Sunday night and we’re back in Green Bay.  We came tonight instead as Jacob will have his scans first thing in the morning.  Please keep him in your prayers that the scans will remain clear.  He will have a CT to check his lungs and an MRI to check his spine.  If all is clear and his blood counts are good, he will start chemo after that.  They’re hoping to have scan results back within an hour or two. 

Some info that I wanted to pass on….

First, I have asked you all in the past to pray for a boy named Deven that had been fighting cancer for quite a while.  Friday, he passed away.  Please keep his family in your prayers!  I can’t imagine what they must be going through.

Second, We need to praise God for blessing Brayden (another young man I’ve asked prayer for).  He has finished chemo!  Thank you Jesus!!!  He had also been receiving treatment for Ewings Sarcoma.  He is doing well.  Please pray for continued health for him.

Well, that’s all for tonight.  I’m tired and we have a long day ahead of us tomorrow.  Thanks in advance for all of your prayers!!  🙂

 

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  1. Jody says:

    WOW, does that sound all too familiar. Trip to ER for pain, being told they think it’s Ewings Sarcoma, port put in place, biopsys done and then having it all verified a short time later. How far we have come eh? I sure hope we can connect this summer and let our boys play in the pool or at the beach and be “normal kids.” I follow your story and again thank you for allowing me to reach out to you in a time when I needed someone to listen. Someone that knew EXACTLY what my heart was feeling as a mom with a sick child. When you get down South here, you let us know and you are always welcome to stay with us. It’s a crazy house with 3 kids, 2 dogs and 2 cats but lots of love and lots of laughs. Take care. Love, Team Crump and it’s President: Jody Crump aka “the Mama.”

  2. Jody says:

    PS- how odd it was the month of march for both our Jacobs. I will never look at March the same again.

  3. Gwen Boynton says:

    I continue to pray for Jacob and your family for a full recovery <3

    My heart is breaking for Deven's family and I will keep them in my prayers.



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