Monday, May 2nd

Today had it’s ups and downs.  It was busy with getting the kids caught up on their homework.  That took us until lunch time.  Then Jacob was able to Skype with his class for about an hour and a half.  I didn’t sit with him through the whole thing, but I heard him giggling quite often.  I think he enjoyed himself tremendously.  I think Skyping will be good therapy for him over the next year.

Jacob did end up having a meltdown this afternoon.  I just hate those!  He certainly has every right, but it’s just heartbreaking!!!  Who wants to hear their child crying and say that they hate everything that they’re going through and they just want to die.  That heaven would be so much better.   This is all while he’s practically hyperventilating.   That’s enough to ruin your whole day.   I know that it’s probably going to happen from time to time.   He’s done so good so far.  I guess I can’t expect him to be in good spirits all the time.  It’s hard not to wonder if we’re doing the right thing…..that is why I have to put all my trust in God!

Thankfully this evening went much better.  He was calm and relaxed.   Tomorrow will be much better.  His cousins birthday is tomorrow, so we’re going to a museum in Grand Rapids and  out to lunch.  I know the kids will have a blast.  That will help Jacob get his mind off of things and mine too.  🙂 

Please continue to pray for Jacob.  Not only for his healing, but his anxiety and fear.   Thankfully this isn’t an ongoing thing, but when it hits – it’s not good!   We’re not going to allow satan to tell him lies and fill him full of fear.  God is bigger than all of that!   I could also use your prayers in moments like those.  It’s a helpless feeling!  We are so thankful for all of you!  You are truly amazing people and such a blessing!

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  1. Kris Harris Pfaffle says:

    Does Jacob like dogs? I ask, because my mother lives in Grand Rapids and visits DeVos Children’s Hospital with her therapy dogs on a regular basis. I’m sure she could stop by and visit Jacob sometime if he is staying in the hospital. If interested, let me know. Blessings Jacob!

  2. Kris Harris Pfaffle says:

    WMTD (West Michigan Therapy Dogs) visits DeVos every 2nd and 4th Tuesday evening; Skaela the schnauzer and my mother visit the 2nd Tuesday. 🙂

  3. Benner Family says:

    It’s brutal for all of you! A few weeks back your entire lives were upended and BAM! here you are. Unfortunately Erin, you can’t have a meltdown…even though you deserve one. For most of us it’s tough to stay positive day after day, let alone a child with a disease he dosen’t quite understand. Do your best and have chocolate…it always makes me feel better.

    PB



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